The capacity of informal caregivers in the rehabilitation of older people after a stroke

Authors

  • Mariane Lurdes Predebon Unimed Porto Alegre
  • Fernanda Laís Fengler Dal Pizzol University of Alberta
  • Naiana Oliveira dos Santos Universidade Franciscana
  • Carla Cristiane Becker Kottwitz Bierhals Universidade Federal do Rio Grande do Sul -UFRGS-
  • Idiane Rosset Universidade Federal do Rio Grande do Sul -UFRGS-
  • Lisiane Manganelli Girardi Paskulin Universidade Federal do Rio Grande do Sul -UFRGS-

DOI:

https://doi.org/10.17533/udea.iee.v39n2e03

Keywords:

caregivers, aged, stroke, nursing

Abstract


Objective. To characterize informal caregivers of dependent older people after a stroke related to aspects of care, and to describe the activities performed and the difficulties faced by these caregivers.

Methods. Cross-sectional, descriptive study, held in southern Brazil with 190 informal caregivers of older adults after stroke. The sociodemographic data instrument and the Capacity Scale for Informal Caregivers of Elderly Stroke Patients (ECCIID-AVC), adapted and validated for use in Brazil by Dal Pizzol et al., were used.

Results. Most caregivers were women (82.6%) or children (56.3%), had average schooling of 9.6 years, and the majority (68.3%) provided care for people with moderate to severe disability. The main activities carried out included: providing materials and/or support for eating (99%), dressing (98.4%), and administering medications (96.2%). Caregivers had the most difficulty with transferring and positioning activities.

Conclusion. Most caregivers have adequate capacity to provide essential care to the dependent older adult after a stroke. However, a significant portion had difficulty in the activities of transferring and positioning the older person due to the lack of guidance regarding the posture to carry out these activities. The assessment of nurses regarding the activities performed and the difficulties faced by caregivers is an important strategy to identify problems and effectively attend to the needs of these individuals at all levels of health care. 

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Author Biographies

Mariane Lurdes Predebon , Unimed Porto Alegre

Nurse, Master´s degree. Unimed Porto Alegre, Porto Alegre, RS, Brasil. Email: predebon11@gmail.com. Corresponding Author

Fernanda Laís Fengler Dal Pizzol , University of Alberta

Nurse, Ph.D. student. University of Alberta, Edmonton, AB, Canada. E-mail: fenglerfernanda@gmail.com

Naiana Oliveira dos Santos , Universidade Franciscana

Nurse, Ph.D. Assistant Professor, Universidade Franciscana, Santa Maria, RS, Brazil. Email: naiaoliveira07@gmail.com

Carla Cristiane Becker Kottwitz Bierhals , Universidade Federal do Rio Grande do Sul -UFRGS-

Nurse, Ph.D. Universidade Federal do Rio Grande do Sul -UFRGS-, Porto Alegre, RS, Brazil. Email: carlakot@yahoo.com.br

Idiane Rosset , Universidade Federal do Rio Grande do Sul -UFRGS-

Nurse, Ph.D. Assistant Professor at UFRGS, Porto Alegre, RS, Brasil. Email: idiane.rosset@ufrgs.br

Lisiane Manganelli Girardi Paskulin , Universidade Federal do Rio Grande do Sul -UFRGS-

Nurse, Ph.D. Associate Professor at UFRGS, Porto Alegre, RS, Brasil. Email: paskulin@ufrgs.br

References

DATASUS, Departamento de Informática do Sistema Único de Saúde. Indicadores de saúde, Epidemiologia e Morbidade, Morbidade Hospitalar do SUS [Health indicators, epidemiology and morbidity, hospital morbidity of SUS] [Internet]; 2020 [cited 12 Apr 2020]. Available from: http://tabnet.datasus.gov.br/cgi/tabcgi.exe?sih/cnv/nibr.def

Silva RC de A, Monteiro GL, Santos AG dos. Nurses’ role in the education of caregivers of patients with stroke. Rev. Atenção Saúde. 2015; 13(45):114-20.

Lima-Costa MF, Peixoto SV, Malta DC, Szwarcwald CL, Mambrini JVM. Informal and paid care for Brazilian older adults (National Health Survey, 2013). Ver. Saude Publica. 2017; 51(Supl 1):6s.

Eliopoulos C. Enfermagem gerontológica. 5th Ed. Porto Alegre: Artmed; 2005.

Costa TF da, Costa KN de FM, Martins KP, Fernandes M das G de M, Brito S da S. Burden over family caregivers of elderly people with stroke. Esc. Anna Nery. 2015; 19(2):350-5.

Silva JK da, Alves T de L, Dantas G de SV, Kelmer LM, Rios MA. Profile of elderly family caregivers after a stroke. Rev. Enferm. UFPE On Linw. 2016; 10(10): 3727-3.

Santos NO, Predebon ML, Bierhals CCBK, Day CB, Machado DO, Paskulin LMG. Development and validation a nursing care protocol with educational interventions for family caregivers of elderly people after stroke. Rev. Bras. Enferm. 2020; 73(Suppl 3): e20180894.

Minayo MCS. Caring for those who care for dependent older adults: for a necessary and urgent policy. Ciênc. Saúde Coletiva. 2021; 26(1): 7-15. 2021.

Government of Canada. Action for seniors report. Canadá. [Internet]. 2021 [cited 17 Mar 2021]. Available from: https://www.canada.ca/en/employment-social-development/programs/seniors-action-report.html

Dal Pizzol FLF, Predebon ML, Day CB, Bierhals CCBK, Machado DO, Aires M, et al. Adaptation and validation of the capacity scale for informal caregivers of elderly stroke patients (ECPICID-AVC) to be used in Brazil. J. Nurs. Meas. 2020; 28(1):23-42.

Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000; 25(24):3186-91.

Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Recommendations for the cross-cultural adaptation of health status measures Washington: American Academy of Orthopaedic Surgeons, Institute for Work & Health [Internet]. 2002 [cited17 Mar 2021]. Available from: https://cadeq.wordpress.com/validation/

Beaton DE, Bombardier C, Guillemin F, Ferraz M. Recommendations for the Cross-Cultural Adaptation of the DASH & QuickDASH Outcome Measures. Institute for Work & Health [Internet]; 2007 [cited17 Mar 2021]. Available from: https://cadeq.wordpress.com/validation/

Hair JF. Análise multivariada de dados. 6th. Ed. Porto Alegre: Bookman; 2009.

Van Swieten JC, Koudstaal PJ, Visser MC, Schouten HJ, van Gijn J. Interobserver agreement for the assessment of handicap in stroke patients. Stroke. 1988; 19(5):604-7.

Araújo O, Lage I, Cabrita J, Teixeira L. Development and psychometric properties of ECPICID-AVC to measure informal caregivers’ skills when caring for older stroke survivors at home. Scand. J. Sci. 2016; 30(4):821-9.

Areosa SVC, Henz LF, Lawisch D, Areosa RC. Take care of oneself and other: study of elderly caregivers. Psicol. Saúde Doenças. 2014; 15(2):482-94.

Reis RD, Pereira EC, Pereira MIM, Soane AMNC, Silva JV da. Meanings to family members living with an elderly affected by stroke sequelae. Interface. 2017; 21(62):641-50.

Costa TF da, Gomes TM, Viana LR de C, Martins KP, Costa KN de FM. Stroke: patient characteristics and quality of life of caregivers. Rev. Bras. Enferm. 2016; 69(5):877-83.

Pereira LTS, Novaes GJ de, Moraes L de, Borges CJ, Souza MR de, Silva LA da, Barros P de S. A look at the health of women caregivers of elderly people: challenges and opportunities. Rev. Kairos. 2017; 20(1):277-97.

Fuhrmann AC, Bierhals CCBK, Santos NO dos, Paskulin LMG. Association between the functional capacity of dependant elderly people and the burden of family caregivers. Rev. Gaúcha Enferm. 2015; 36(1):14-20.

Duarte YAO, Nunes DP, Corona LP, Lebrão M. Como estão sendo cuidados os idosos frágeis de São Paulo? A visão mostrada pelo estudo SABE (Saúde, Bem-Estar e Envelhecimento). In: Camarano AA, organizadora. Cuidados de longa duração para a população idosa: um novo risco social a ser assumido? Rio de Janeiro: IPEA [Internet]; 2010 [cited 06 Apr 2020]; 123-144. Available from: http://www.ipea.gov.br/portal/images/stories/PDFs/livros/livro_cuidados.pdf

Cruz TH da, Tatsch PN, Piccin C, Machado LG, Chaves OCS, Girardon-Perlini NMO. Dificuldades enfrentadas por cuidadores familiares de pacientes acometidos por acidente vascular encefálico. Rev. Rede Cuidados em Saúde. 2017; 11(1):2-17.

Aires M, Pizzol FLFD, Mocellin D, Morais EP de, Rosset I, Paskulin LMGR. Cross-cultural adaptation of the Filial Responsibility protocol for use in Brazil. Ver. Bras. Enferm. 2017; 70(6):1268-76.

Herrera A, Lee J, Palos G, Torres-Vigil I. Cultural Influences in the Patterns of Long-Term Care Use Among Mexican American Family Caregivers. J. Appl. Gerontol. 2008; 27(2):141-65.

Sousa GS, Silva RM, Reinaldo AMS, Soares SM, Gutierrez DMD, Figueiredo MLF. “We are humans after all”: Family caregivers’ experience of caring for dependent older people in Brazil. Ciên. Saúde Colet. 2021; 26(1):27-36.

Bierhals CCBK, Santos NO dos, Fengler FL, Raubustt KD, Forbes DA, Paskulin LMG. Needs of family caregivers in home care for older adults. Rev. Latino-Am. Enfermagem. 2017; 25:e2870.

Libório ELF, Fietz VR, Watanabe, EAMT. Living of the caregivers in relation to domiciliary enteral nutritional therapy. Labore em Ensino de Ciências. 2016; 1(esp):126-39.

Ferreira RS, Pereira L da R, Teles MAB, Oliveira KCF, Barbosa-Medeiros MR. Perception of caregivers about the assistance to patients under household enteral nutrition. Rev. Enferm UFPE On Line. 2017; 11(1):303-8.

Ayala ALM, Galende ACBP da S, Stoeberl FR. Care in prevention of pressure ulcers of bedridden patients at home. Semina: Ciências Biológicas e da Saúde. 2017; 37(2):25-38.

Rodrigues LMP. Influência de um programa de intervenção de Enfermagem de Reabilitação no cuidador informal - minimização da Sobrecarga e prevenção de lesões músculo-esqueléticas associadas ao cuidar [tese de mestrado]. Bragança (Portugal): Instituto Politécnico de Bragança, Escola Superior de Saúde; 2018. 105p.

Ministério da Saúde. Portaria n. 963, de 27 de maio de 2013. Redefine a Atenção Domiciliar no âmbito do Sistema Único de Saúde. Brasília (DF): Ministério da Saúde 2013 [cited22 abr 2020]. Available from: http://bvsms.saude.gov.br/bvs/saudelegis/gm/2013/prt0963_27_05_2013.html

Published

2021-06-12

How to Cite

Predebon , M. L. ., Dal Pizzol , . F. L. F. ., dos Santos , N. O. ., Bierhals , C. C. B. K. ., Rosset , I. ., & Paskulin , L. M. G. . (2021). The capacity of informal caregivers in the rehabilitation of older people after a stroke. Investigación Y Educación En Enfermería, 39(2). https://doi.org/10.17533/udea.iee.v39n2e03

Issue

Section

ORIGINAL ARTICLES / ARTÍCULOS ORIGINALES / ARTIGOS ORIGINAIS

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