Caring for pregnant women with diagnosis of fetal malformation.
DOI:
https://doi.org/10.17533/udea.iee.16012Keywords:
Caregivers; congenital abnormalities; anthropology, cultural; pregnancy.Abstract
Objective. To describe the beliefs, experiences, and practices of caring for pregnant women with diagnosis of fetal malformation.
Methodology. Focused ethnography with the participation of eight women older than 18 years of age with diagnosis of fetal malformation and whose parturition occurred in a tier III hospital. The sample size was defined per data saturation. The information was obtained through in-depth interviews and analysis with the Spradley methodology.
Results. The women endured the experience as a painful process, from which they manifested fear, uncertainty, and culpability regarding the diagnosis. This situation led them to using coping strategies like faith in God, adhering to recommendations from healthcare personnel, and carrying out cultural practices. Because the diagnosis was made during the advanced stage of the pregnancy, the participants had to continue with the gestation and adapt the self-care practices during this period.
Conclusion. Self-care practices and relationships were evidenced among the women and the social support networks and the healthcare system, which favored confronting this situation by the pregnant women and their families, which permitted their carrying the gestation until the end.
Downloads
References
(1) Zarante I, Franco L, López C, Fernández N. Frecuencia de malformaciones congénitas: evaluación y pronóstico de 42. Nacimientos en tres ciudades colombianas. Biomédica. 2010; 30(1):65-71.
(2) Vélez JE, Herrera LE, Arango F, López G. Malformaciones Congénitas: correlación, diagnóstico ecográfico y clínico. Rev Colomb Obstet Ginecol. 2004; 55(3):201-08.
(3) Zarate I, Castillo M, García N, Suarez F, Gutiérrez CA, Umaña A. Análisis clínico epidemiológico de factores asociados a malformaciones congénitas ECLAMC-Hospital Universitario San Ignacio junio-diciembre de 2001. Univ Med. 2002;43(2):121-7.
(4) 47° Consejo directivo de La Organización Panamericana de La Salud 58va Sesión del Comité Regional. La salud neonatal en el contexto de la salud de la madre, el recién nacido y el niño para cumplir los objetivos del desarrollo del milenio de Las Naciones Unidas. Washington: OPS; 2006.
(5) García H, Salguero GA, Moreno J, Arteaga C, Giraldo A. Frecuencia de anomalías congénitas en El Instituto Materno Infantil de Bogotá. Colombia. Biomédica. 2003; 23 (002): 161-72
(6) World Health Organization, International Center for Birth Defects of the International Clearinghouse for Birth Defects Monitoring Systems in collaboration with EUROCAT and in cooperation with Human Genetic Programme. World Atlas of Birth Defects. Geneva: WHO; 2002.
(7) Monsalve A, Londoño I, Ocampo J, Cruz D, Saldarriaga W, Isaza C. Geographical distribution of congenital malformations at Hospital Universitario del Valle, Santiago de Cali, Colombia, march of 2004- february os 2005. Colomb Med. 2007; 38(1):47-51.
(8) Boyle J. Estilos de etnografía. En: Morse J., editora. Asuntos críticos en los métodos de investigación cualitativa. 3rd ed. Medellín: Editorial Universidad de Antioquia; 2003. p.185-211
(9) Sitzman L, Wright L. Understanding the work of nurse theorist: A creative beginning. 2nd ed. Sudbury (MA): Jones & Bartlett Learning; 2010.
(10) Limbo P. Transcultural Nursing Theory and Models. 1st ed. New Yorw: Springer Publishing Company; 2011.
(11) Leininger M. Ethnography and Ethno nursing: Models and modes of qualitative data analysis. In: Leininger M, editor. Qualitative Research methods in nursing. Orlando, Fl: Grune & Stratton; 1985. p.33-75.
(12) Spradley J, McCurdy D. The cultural experience: Ethnography in Complex Society. 2nd ed. Long Grove, IL: Editorial Waveland Press; 2005.
(13) Mosquera S, Ostos A. Representaciones sociales de las madres y un padre en torno a las alteraciones congénitas de sus hijos. Iatreia. 2010; 23(4-S):S43.
Published
How to Cite
Issue
Section
License
Derechos de propiedad / Direitos de Propriedade
English: If the article is accepted for publication, all copyright will be of exclusive property of Investigación y Educación en Enfermería. The text and the graphics included in the publication are exclusive responsibility of the authors and not necessarily reflect the thought of the Editorial Committee.
Español: Si el artículo es aprobado para publicación, todos los derechos son de propiedad de Investigación y Educación en Enfermería. El texto y las gráficas incluidas en la publicación son de exclusiva responsabilidad de los autores y no necesariamente refleja el pensamiento del Comité Editorial.
Português: Se o artigo for aceito para publicação, todos os direitos autorais serão de propriedade exclusiva de Investigación y Educación en Enfermería. O texto e os gráficos incluídos na publicação são de responsabilidade exclusiva dos autores e não refletem necessariamente o pensamento do Comitê Editorial.
