Families’ concerns about the care of children with technology-dependent special health care needs

  • Joyce de Souza Esteves RN, Fluminense Federal University - UFF. Niterói, RJ, Brazil. email: joyce_esteves@hotmail.com
  • Liliane Faria da Silva RN, Ph.D. Professor, UFF. Niterói, RJ, Brazil. email: lili.05@hotmail.com
  • Daniele Santos da Conceição RN, Master. Institute Fernandes Figueira - IFF. Rio de Janeiro, RJ, Brazil. email: danisancon@gmail.com
  • Eny Dórea Paiva RN, Ph.D. Professor, UFF. Niterói, RJ, Brazil. email: enydorea@ig.com.br
Keywords: Pediatric nursing, disabled children, health communication.

Abstract

Objective. To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses’ performance in the face of these concerns.

Methodology. Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members’ home. Data were submitted to content analysis.

Results. Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge.

Conclusion. The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.

 

How to cite this article: Esteves JS, Silva LF, Conceição DS, Paiva ED.  Families’ concerns about the care of children with technology-dependent special health care needs. Invest Educ Enferm. 2015; 33(3):

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Published
2015-09-29
How to Cite
de Souza EstevesJ., Faria da SilvaL., da ConceiçãoD. S., & Dórea PaivaE. (2015). Families’ concerns about the care of children with technology-dependent special health care needs. Investigación Y Educación En Enfermería, 33(3). Retrieved from https://revistas.udea.edu.co/index.php/iee/article/view/24464
Section
ORIGINAL ARTICLES / ARTÍCULOS ORIGINALES / ARTIGOS ORIGINAIS