Family Economic Burden Associated to Caring for Children with Cancer
DOI:
https://doi.org/10.17533/udea.iee.v36n1e07Keywords:
Cost of illness, neoplasms, child.Abstract
Objective. This work sought to determine the family economic burden associated with caring for the child with cancer.
Methods. Descriptive study with quantitative approach. The sample comprised 50 families of children with cancer attending a foundation in Bogotá (Colombia), which accompanies integrally children with lupus and cancer from a vulnerable population (providing food, psychological and spiritual advice, lodging, transportation and education). An identification file was employed to characterize the subjects and the Survey “Financial cost of caring for Chronic illness” by Montoya et al. The analysis was performed through the methodology “Economic burden attributable to caring for a person with chronic illness in Colombia” (CARACOL, for the term in Spanish), which quantifies the level of burden in sexagesimal degrees and the financial cost of the burden; a higher number of sexagesimal degrees indicate a higher level of economic burden.
Results. Families of children with cancer have a high economic burden, in particular in transportation (28.5°), communications (26.3°), health (20.8°), housing (19.7°), and food (17.4°).
Conclusion. The families have a high economic burden associated with caring for the child with cancer. It is necessary to implement social support strategies to these families to keep the economic burden from interfering with adherence to treatment and, hence, with the child’s survival.
How to cite this article: Rativa M, Carreño SP. Family Economic Burden Associated to Caring for Children with Cancer. Invest. Educ. Enferm. 2018; 36(1):e07.
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(1) International Agency for Research on Cancer [Internet]. Latest data show a global increase of 13% in childhood cancer incidence over two decades. –Press release N° 251. Lyon, France: IARC; 2017 [cited 15 Apr 2017]. Available from: http://www.iarc.fr/en/media-centre/pr/2017/pdfs/pr251_E.pdf
(2) American Cancer Society. Datos y estadísticas sobre el cáncer entre los hispanos/latinos 2012-2014 [Internet]. Atlanta: American Cancer Society; 2017 [cited 15 Nov 2017]. Available from: https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/cancer-facts-and-figures-for-hispanics-and-latinos/datos-y-estad%C3%ADsticas-sobre-el-c%C3%A1ncer-entre-los-hispanos-latinos-2012-2014.pdf
(3) Pardo R, Cendales D. Incidencia, mortalidad y prevalencia de cáncer en Colombia 2007-2011 [Internet]. Bogotá: Instituto Nacional de Cancerología. Available from: http://www.cancer.gov.co/files/libros/archivos/incidencia1.pdf
(4) Ireys HT, Chernoff R, De vet KA. Maternal Outcomes of a Randomized Controlled trial of a Community-Based Support Program for Families of Children with Chronic Illnesses. Arch. Pediatr. Adolesc. Med. 2001; 155(7):771-7.
(5) Grau C. Impacto psicosocial del cáncer infantil en la familia. Educ. Desarr. Diversidad. 2002; 5(2):87-106.
(6) Leal J, Luengo R, Sullivan R, Witjes J. Economic burden of cancer across the European Union: a population-based cost analysis. Eau.2013; 69:438-47.
(7) Organización Panamericana de la Salud. Diagnóstico temprano de cáncer en la niñez [Internet]. Washington, D.C: OPS; 2015 [cited 15 Jan 2016]. Available from: http://www.paho.org/hq/index.php?option=com_content&view=article&id=10277%3A2014-publication-early-diagnosis-of-childhood-cancer&catid=5041%3Acancer-media-center&Itemid=42042&lang=es
(8) Flury M, Caflish T, Ullmann-Bremi A, Spichiger E . Experiences of Parents with Caring for Their Child after a Cancer Diagnosis. J. Pediatr. Oncol. Nurs. 2011; 28(3):143-53.
(9) Barrera L, Carrillo GM, Chaparro L, Sánchez B. Modelo para abordar la carga del cuidado de la enfermedad crónica en Colombia. Orinoquia. 2015; 19 (1): 89-99.
(10) Sánchez-Herrera B, Gallardo-Solarte K, Montoya-Restrepo LA, Rojas-Martínez MV, Solano-Aguilar S, Vargas LD. Carga financiera del cuidado familiar del enfermo crónico en la Región Andina de Colombia. Rev. Cienc. Salud. 2016; 14(3): 341-52.
(11) Montoya A, Montoya I, Ocampo JZ, Chaparro L, Sánchez B. Diseño y validación de la encuesta costo financiero del cuidado de la enfermedad crónica. Salud Uninorte; 2017 [cited 17 Nov 2017]: 33(3). Available from: http://rcientificas.uninorte.edu.co/index.php/salud/article/viewArticle/6561
(12) Morales ON, Pinitu GA, Escobar CA. Carga financiera del cuidado del enfermo crónico en un grupo de familias en Guatemala. Rev. Duazary. 2016; 14(1): 45-53.
(13) Mayorga JH, Montoya LA, Montoya I, Sánchez B, Sandoval N. Metodología para analizar la carga financiera del cuidado familiar de una persona con enfermedad crónica. Rev. Cienc. Biomed. 2015; 6(1):96–106.
(14) Fluchel M, Kirchhoff A, Bodson J, Sweeney C, Edward S, Ding Q, et al., Geography and burden of care in pediatric cancers. Pediatr. Blood Cancer. 2014; 61(11):1918–924.
(15) Miller JE, Nugent CN, Russell LB. Risk factors for family time burdens providing and arranging health care for children with special health care needs: Lessons from non-proportional odds models. Soc. Sci. Res. 2015; 52:602–14.
(16) Castillo E, Chesla CA, Echeverry G, Tascón EC, Charry M, Chicangana JA, Pomar DM. Satisfacción de los familiares cuidadores con la atención en salud dada a adultos y niños con cáncer. Colombia Med (Cali).2007; 25(1):19–32.
(17) Giraldo CI, Franco GM. Calidad de vida entre los cuidadores familiares. Aquichán. 2006; 6(1):38-53.
(18) Bona K, Dussel V, Orellana L, Kang T, Geyer R, Feudtner C, et al., Economic Impact of Advanced Pediatric Cancer on Families. J. Pain Symptom Manag.2014; 47(3):594–603.
(19) Rubira E, Munhoz M, Martinez M, Barbosa D, Silva A. Taking care of children with cancer: evaluation of the caregivers' burden and quality of life Cuidando del niño con cáncer: evaluación de la sobrecarga y calidad de vida de los cuidadores. Rev. Latino-Am. Enfermagem.2011; 19(3): 515-22.
(20) Pozo C, Bretones A, Martos MJ, Morillejo E, Cid N, Pozo C, et al., Repercusiones psicosociales del cáncer infantil: apoyo social y salud en familias afectadas. Rev. Latinoam. Psicol. 2015; 47(2):93-101.
(21) Zúñiga-serratos C, Loredo-Abdalá A, Trejo-Hernández J. Maltrato infantil: indicadores clínicos y sociales de maltrato físico en niños con cáncer. Acta Pediatr. Mex. 2007; 28(1): 15-20.
(22) Ávila-Montiel D, Ortega-Martin V, Ruiz-Cano, Dorantes-Acosta E. Análisis de la alimentación de los cuidadores de pacientes pediátricos con cáncer en el Hospital Infantil de México Federico Gómez. Bol. Med. Hosp. Infant. Mex. 2013; 70(2): 159-65.
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