Lived Experience of Iranian Family Caregivers of Tubercular Patients: A Qualitative Study
DOI:
https://doi.org/10.17533/udea.iee.v40n3e02.Keywords:
caregivers, hermeneutics, qualitative research, tuberculosisAbstract
Objective. To investigate the lived experience of family caregivers of persons with tuberculosis.
Methods. In this study, the method of hermeneutic phenomenology. Data were collected through online in-depth semi-structured interviews with nine family caregivers of TB patients. The obtained data were thematically analyzed to explain the concept of home care for TB patients through van Manen's 6-step methodology.
Results. After the thematic analysis, three main themes of caregivers'; mental distresses, quality care stasis, and
facilitated care were obtained from 944 primary codes and 11 categories.
Conclusion. Family caregivers of these patients suffer from mental distress. This issue affects the quality and ease of caregiving for these patients. Therefore, policymakers of this area should pay attention to the family caregivers of these patients and attempt to provide support; they should try to improve their quality of life.
Downloads
References
1. Bloom BR, Atun R, Cohen T, Dye C, Fraser H, Gomez GB, et al. Tuberculosis. In: Holmes KK, Bertozzi S, Bloom BR, Jha P,
editors. Major Infectious Diseases. Washington (DC): The International Bank for Reconstruction and Development / The World
Bank© 2017 International Bank for Reconstruction and Development / The World Bank.; 2017.
2. Organization WH. Global tuberculosis report 2018 Geneva: World Health Organization; 2018 [cited 2020. Available from:
http://apps. who. int/iris/bitstream ….
3. Shirzad-Aski H, Hamidi N, Sohrabi A, Abbasi A, Golsha R, Movahedi J. Incidence, risk factors and clinical characteristics of
extra-pulmonary tuberculosis patients: a ten-year study in the North of Iran. Tropical medicine & international health : TM & IH.
;25(9):1131-9.
4. Sahile Z, Yared A, Kaba M. Patients' experiences and perceptions on associates of TB treatment adherence: a qualitative
study on DOTS service in public health centers in Addis Ababa, Ethiopia. BMC Public Health. 2018;18(1):462.
5. Du Toit DA, Van Staden SJ. Nursing sociology. 4 ed. South Africa: Van Schaik Publishers 2014.
6. Akeju OO, Wright SC, Maja TM. Lived experience of patients on tuberculosis treatment in Tshwane, Gauteng province.
health sa gesondheid. 2017;22(1):259-67.
7. Behzadifar M, Mirzaei M, Behzadifar M, Keshavarzi A, Behzadifar M, Saran M. Patients' Experience of Tuberculosis
Treatment Using Directly Observed Treatment, Short-Course (DOTS): A Qualitative Study. Iranian Red Crescent medical journal.
;17(4):e20277.
8. Evenden P, Roche A, Karo B, Balasegaram S, Anderson CS. Presentation and healthcare delays among people with
tuberculosis in London, and the impact on treatment outcome. BMJ open respiratory research. 2019;6(1):e000468.
9. Lewis SM, McLean Heitkemper M, Bucher L, Harding M, Kwong J, Roberts D. Medical-surgical nursing: Assessment and
management of clinical problems. 10 ed: Mosby Elsevier; 2016.
10. Shatil T KN, Yunus FM, Chowdhury AS, Reza S, Islam S, Islam A, Rahman M. What Constitutes Health Care Seeking Pathway
of TB Patients: A Qualitative Study in Rural Bangladesh. J Epidemiol Glob Health. 2019 Dec;9(4):300-8.
11. Ushie BA, Jegede AS. The paradox of family support: concerns of tuberculosis-infected HIV patients about involving family
and friends in their treatment. AIDS patient care and STDs. 2012;26(11):674-80.
12. Van Manen M. Researching lived experience: Human science for an action sensitive pedagogy: Routledge; 2016.
13. Zuñiga JA. A Woman's Lived Experience With Directly Observed Therapy for Tuberculosis—A Case Study. Health care for
women international. 2012;33(1):19-28.
14. Polit D, Beck C. Essentials of nursing research. Ethics. 2012;23(2):145-60.
15. Woo K. Polit & Beck Canadian Essentials of Nursing Research: Lippincott Williams & Wilkins; 2017.
16. Mohebbi Z, Sharif F, Peyrovi H, Rakhshan M, Alizade Naini M, Zarshenas L. Patients’ experience of living with irritable bowel
syndrome (IBS): A hermeneutic phenomenology. Journal of Qualitative Research in Health Sciences. 2020;9(1):28-37.
17. Magrini J. Phenomenology for educators: Max van Manen and" human science" research. 2012.
18. Speziale HS, Streubert HJ, Carpenter DR. Qualitative research in nursing: Advancing the humanistic imperative: Lippincott
Williams & Wilkins; 2011.
19. Lincoln YS, Guba EG. Criteria for Assessing Naturalistic Inquiries as Reports. 1988.
20. Mindu C, López-Varela E, Alonso-Menendez Y, Mausse Y, Augusto OJ, Gondo K, et al. Caretakers' perspectives of paediatric
TB and implications for care-seeking behaviours in Southern Mozambique. Plos one. 2017;12(9):e0182213.
21. Choudhary G. Caring of Tuberculosis Patients: A Study of Psychosocial Factors. International Journal of Innovative
Knowledge Concepts. 2019;7(2):98-104.
22. Rakhmawati W, Nilmanat K, Hatthakit U. Living with Stigma: The Experience of Tuberculosis Patients and Family Caregivers
in Indonesia. Indian Journal of Public Health Research & Development. 2019;10(10):2061-2065.
23. Matakanye H, Ramathuba DU, Tugli AK. Caring for Tuberculosis Patients: Understanding the Plight of Nurses at a Regional
Hospital in Limpopo Province, South Africa. International journal of environmental research and public health. 2019;16(24):4977.
24. Saifodine A, Gudo PS, Sidat M, Black J. Patient and health system delay among patients with pulmonary tuberculosis in Beira
city, Mozambique. BMC public health. 2013;13(1):1-7.
25. Burusie A, Lamaro T, Dessalegn B. Lived Experience of Multi-Drug Resistant Tuberculosis Patient; A Hermeneutic
Phenomenological Study. J Prev Med. 2020;5(3):09.
Published
Versions
- 2023-09-20 (2)
- 2022-11-12 (1)
How to Cite
Issue
Section
License
Copyright (c) 2022 Investigación y Educación en Enfermería
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Derechos de propiedad / Direitos de Propriedade
English: If the article is accepted for publication, all copyright will be of exclusive property of Investigación y Educación en Enfermería. The text and the graphics included in the publication are exclusive responsibility of the authors and not necessarily reflect the thought of the Editorial Committee.
Español: Si el artículo es aprobado para publicación, todos los derechos son de propiedad de Investigación y Educación en Enfermería. El texto y las gráficas incluidas en la publicación son de exclusiva responsabilidad de los autores y no necesariamente refleja el pensamiento del Comité Editorial.
Português: Se o artigo for aceito para publicação, todos os direitos autorais serão de propriedade exclusiva de Investigación y Educación en Enfermería. O texto e os gráficos incluídos na publicação são de responsabilidade exclusiva dos autores e não refletem necessariamente o pensamento do Comitê Editorial.
