Establishing a Partnership to Support an HIV Prevention Intervention for Latina Women in South Florida (United States of America)
DOI:
https://doi.org/10.17533/udea.iee.v42n3e10Keywords:
community-based participatory research, HIV, Hispanic or Latino womenAbstract
Objective. To describe practices used in the formation of a community-based participatory research (CBPR) partnership between M.U.J.E.R., a community-based organization located in South Florida, and the School of Nursing and Health Studies at the University of Miami (United States of America). The purpose of this partnership was to adapt SEPA -Salud, Educación, Prevención, Autocuidado; Health, Education, Prevention, Self-care, in English- into SEPA+PrEP -Salud, Educación, Prevención, Autocuidado + Profilaxis Pre-exposición; Health, Education, Prevention, Self-care + Pre-exposure prophylaxis, in English) to facilitate CBPR focused on HIV prevention among Latina women.
Methods. Our community-based participatory research (CBPR) partnership blends multiple perspectives from community partners (community advisory board, community centers), clinical experts, cisgender heterosexual Latina members of the community, and academic/research members.
Results. Partnering practices included (i) developing a collaborative and trusting partnership, (ii) relationship building and attending to power dynamics, (iii) building capacity through mutual learning, (iv) conducting research to address barriers to HIV prevention among Latina women, and (v) implementation of knowledge gained in future CBPR.
Conclusion. The long-term success of our CBPR partnership should be measured by the capacity developed within the community and the successful implementation of community programming. Key Intentional implementation of CBPR partnership practices, tailored to academic and community institutions’ unique needs, can result in high-trust, long-term relationships.
Downloads
References
1. Centers for Disease Control and Prevention. Health Disparities in Hispanic or Latino People [Internet]. United States: CDC; 2024 [cited 2024 Jul 1]. Available from: https://www.cdc.gov/health-disparities-hiv-std-tb-hepatitis/populations/hispanic-latino.html
2. HIV.gov. (2019). CDC, Women and HIV: Where We Are Going? [Internet]. United States: U.S. Department of Health & Human Services; 2019 [cited 2024 Jul 1]. Available from:
https://www.hiv.gov/blog/cdc-women-and-hiv-where-we-are-going
3. HHS.gov. HIV/AIDS and Hispanic Americans [Internet]. United States: U.S. Department of Health and Human Services Office of Minority Health; 2021 [cited 2024 Jul 1]. Available from: https://minorityhealth.hhs.gov/hivaids-and-hispanic-americans#:~:text=Hispanic%20females%20were%20four%20times,to%20die%20of%20HIV%20infection.
4. Levison JH, Levinson JK, Alegría M. A Critical Review and Commentary on the Challenges in Engaging HIV-Infected Latinos in the Continuum of HIV Care. AIDS and Behavior. 2018; 22(8):2500-12.
5. Centers for Disease Control and Prevention. Ending the HIV epidemic in the US goals [Internet]. United States: CDC; 2023 [cited 2024 Jul 1]. Available from: https://www.cdc.gov/ehe/php/about/goals.html?CDC_AAref_Val=https://www.cdc.gov/endhiv/about-ehe/pillars.html
6. Carnevale C, Zucker J, Borsa A, Northland B, Castro J, Molina E, et al. Engaging a Predominantly Latino Community in HIV Prevention: Laying the Groundwork for Pre-exposure Prophylaxis and HIV Sexual Health Programs. Journal of the Association of Nurses in AIDS Care. 2020; 31(1):92-7.
7. Raifman JR, Schwartz SR, Sosnowy CD, Montgomery MC, Almonte A, Bazzi AR, Drainoni ML, Stein MD, Willie TC, Nunn AS, Chan PA. Brief Report: Pre-exposure Prophylaxis Awareness and Use Among Cisgender Women at a Sexually Transmitted Disease Clinic. Journal of Acquired Immune Deficiency Syndromes. 2019; 80(1):36-9.
8. Bandura A. Health promotion from the perspective of social cognitive theory. In: Charles A, Norman P, Conner M. Understanding and Changing Health Behaviour. From Health Beliefs to Self-Regulation. Psychology Press. 2013: 299-342.
9. Freire P. Pedagogy of the oppressed. Toward a sociology of education. Routledge; 2020: 374-386.
10. Peragallo N, Deforge B, O'Campo P, Lee SM, Kim YJ, Cianelli R, Ferrer L. A randomized clinical trial of an HIV-risk-reduction intervention among low-income Latina women. Nursing Research. 2005; 54(2):108-18.
11. Peragallo N, Gonzalez-Guarda RM, McCabe BE, Cianelli R. The efficacy of an HIV risk reduction intervention for Hispanic women. AIDS and Behavior. 2012; 16(5):1316-26.
12. Peragallo Montano N, Cianelli R, Villegas N, Gonzalez-Guarda R, Williams WO, de Tantillo L. Evaluating a Culturally Tailored HIV Risk Reduction Intervention Among Hispanic Women Delivered in a Real-World Setting by Community Agency Personnel. American Journal of Health Promotion. 2019; 33(4):566-75.
13. Cianelli R, De Santis JP, De Oliveira GC, Castro JG, Iriarte E, Baeza MJ. Feasibility and acceptability of SEPA+PrEP: An HIV prevention intervention to increase PrEP knowledge, initiation, and persistence among cisgender heterosexual Hispanic women. PLoS One. 2024; 19(1):e0296080.
14. HIV.gov. Priority Jurisdictions: Phase I [Internet]. United States: U.S. Department of Health & Human Services; 2020 [updated 2023 Dec 20; cited 2024 Jul 1]. Available from: https://www.hiv.gov/federal-response/ending-the-hiv-epidemic/jurisdictions/phase-one/
15. Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Health. 1998; 19:173-202.
16. Rhodes SD, Duck S, Alonzo J, Ulloa JD, Aronson RE. Using community-based participatory research to prevent HIV disparities: assumptions and opportunities identified by the Latino partnership. Journal of Acquired Immune Deficiency Syndromes. 2013; 63 Suppl 1(01):S32-5.
17. MUJER Fla.org. Mission, vision, philosophy [Internet]. United States; 2018 [cited 2024 Jul 1]. Available from: http://mujerfla.org/about-us/agency-mission/
18. Cianelli R, Villegas N. Social Determinants of Health for HIV Among Hispanic Women. Hispanic Health Care International. 2016; 14(1):4-9.
19. CITI Program. Human Subjects Research (HSR) online training series [Internet]. United States; 2024 [cited 2024 Jul 1]. Available from: https://about.citiprogram.org/
20. Collins SE, Clifasefi SL, Stanton J, The Leap Advisory Board, Straits KJE, Gil-Kashiwabara E, Rodriguez Espinosa et al. Community-based participatory research (CBPR): Towards equitable involvement of community in psychology research. The American Psychology. 2018; 73(7):884-98.
21. Marrone NL, Nieman CL, Coco L. Community-Based Participatory Research and Human-Centered Design Principles to Advance Hearing Health Equity. Ear and Hearing. 2022; 43(Suppl 1): 33S-44S.
22. HIV.gov. What is the impact of HIV on racial and ethnic minorities in the U.S.? [Internet]. United States: U.S. Department of Health & Human Services; 2023 [updated 2023 Dec 18; cited 2024 Jul 1]. Available from: https://www.hiv.gov/hiv-basics/overview/data-and-trends/impact-on-racial-and-ethnic-minorities/
23. Minkler M, Garcia AP, Rubin V, Wallerstein N. Community-based participatory research: A strategy for building healthy communities and promoting health through policy change [Internet]. United States: PolicyLink & The University of California, Berkeley School of Public Health; 2012 [cited 2024 Jul 1]. Available from: https://www.policylink.org/sites/default/files/CBPR.pdf
24. Kwon SC, Tandon SD, Islam N, Riley L, Trinh-Shevrin C. Applying a community-based participatory research framework to patient and family engagement in the development of patient-centered outcomes research and practice. Translational Behavioral Medicine. 2018; 8(5):683-91.
25. Andrews JO, Newman SD, Meadows O, Cox MJ, Bunting S. Partnership readiness for community-based participatory research. Health Education Research. 2012; 27(4):555-71.
26. Jull J, Giles A, Graham ID. Community-based participatory research and integrated knowledge translation: Advancing the co-creation of knowledge. Implement Science. 2017; 12(1):150.
27. Goodman CA, Thomas KA, Nnawulezi N, Lippy C, Serrata JV, Ghanbarpour S, Sullivan C, Bair-Merrit MH. Bringing community-based participatory research to domestic violence scholarship: An online toolkit. Journal of Family Violence. 2018; 33(2):103-7.
Downloads
Published
Versions
- 2024-12-09 (2)
- 2024-11-15 (1)
How to Cite
Issue
Section
License
Copyright (c) 2024 Investigación y Educación en Enfermería
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
Derechos de propiedad / Direitos de Propriedade
English: If the article is accepted for publication, all copyright will be of exclusive property of Investigación y Educación en Enfermería. The text and the graphics included in the publication are exclusive responsibility of the authors and not necessarily reflect the thought of the Editorial Committee.
Español: Si el artículo es aprobado para publicación, todos los derechos son de propiedad de Investigación y Educación en Enfermería. El texto y las gráficas incluidas en la publicación son de exclusiva responsabilidad de los autores y no necesariamente refleja el pensamiento del Comité Editorial.
Português: Se o artigo for aceito para publicação, todos os direitos autorais serão de propriedade exclusiva de Investigación y Educación en Enfermería. O texto e os gráficos incluídos na publicação são de responsabilidade exclusiva dos autores e não refletem necessariamente o pensamento do Comitê Editorial.
