Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

  • Joice Soares Campos Health Department of Araguari
  • Anna Cláudia Yokoyama dos Anjos Federal University of Uberlândia
  • Sebastião Benício da Costa Neto University of Goiás
  • Rodrigo Sanches Peres Federal University of Uberlândia
Keywords: caregivers, home nursing, aged, family health, qualitative research

Abstract

Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. 

Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.  

Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles. 

Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.

 

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Author Biographies

Joice Soares Campos , Health Department of Araguari

MSc in Psychology. Psychologist at the Health Department of Araguari, Araguari-MG, Brazil. Email: joicepsicoufu@yahoo.com.br

Anna Cláudia Yokoyama dos Anjos , Federal University of Uberlândia

RN, PhD. Professor at the Federal University of Uberlândia, Uberlândia-MG, Brazil. Email: annaclaudia1971@gmail.com

Sebastião Benício da Costa Neto , University of Goiás

Psychologist, PhD. Professor at the Pontifical Catholic University of Goiás, Goiânia-GO, Brazil. Email: sebastiaobenicio@gmail.com

Rodrigo Sanches Peres , Federal University of Uberlândia

Psychologist, PhD. Professor at the Federal University of Uberlândia, Uberlândia-MG, Brazil. Email: rodrigosanchesperes@ufu.br. Corresponding author

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Published
2021-06-12
How to Cite
Campos J. S., dos Anjos A. C. Y., Neto S. B. da C., & Peres R. S. (2021). Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Investigación Y Educación En Enfermería, 39(2). https://doi.org/10.17533/udea.iee.v39n2e09
Section
ORIGINAL ARTICLES / ARTÍCULOS ORIGINALES / ARTIGOS ORIGINAIS