Communication from the news of the birth of a child with Down Syndrome: the effect of a discouraging prediction
DOI:
https://doi.org/10.17533/udea.rfnsp.7559Keywords:
Down Syndrome, news, parenting, mothers, medical trainingAbstract
Objective: to know how health workers give the news of the birth of a child with Down syndrome (DS). Methodology: qualitative, ethnographic. Involved 20 mothers and one grandmother were semi structured interviews and field observations. Results: the news of the birth of the child with ds occurs in a cold, dehumanized, from an unresolved disability. Discussions: mothers perceived health workers disregard for their circumstances. Most will convey the idea of an abnormal child with a disability that will create many problems. The way that mother receive the news is not conducive to meeting with the child and puts in uncertainty the future vision of mother-child relationship. Conclusions: the health academically untrained to break the news of the birth of a child with ds and sensitivity to support her in meeting her son. Recommendations: to prepare students in the areas of health to provide different types of news in humanizing environment in which it has much value as the biological and social psychoactive.
Downloads
References
(1). Sherman S, Allen G, Bean L, Freeman S. Epidemiology of Down Syndrome. Ment Retard Dev Disabil Res Rev 2007; 13: 221- 227. DOI: https://doi.org/10.1002/mrdd.20157
(2). Ramírez RE, Isaza C, Gutiérrez MI. La incidencia del síndrome de Down en Cali. Colomb Med 1996; 27: 138-142.
(3). Devlin L, Morrison PJ. Accuracy of the clinical diagnosis of Down syndrome. Ulster Med J 2004; 73(1): 4-12.
(4). Hatice RN, Dokuz E, Gunsel RN. Experiences of mothers of children with Down syndrome. Paediatr Nurs 2006; 18(4): 29-32. DOI: https://doi.org/10.7748/paed2006.05.18.4.29.c1024
(5). Martini S. Periodismo, noticia y noticiabilidad. Enciclopedia latinoamericana de sociocultura y comunicación. Bogotá: Norma; 2002.
(6). Rossel K. Apego y vinculación en el Síndrome de Down, una emergencia. Rev Pediatr Electron. 2004; 1(1). [Internet] [Consultada Agosto 29 2009]. Disponible en: http://www.revistapediatria.cl/vol1num1/pdf/apego.pdf.
(7). Hammersley M, Atkinson P. Etnografía métodos de investigación. Buenos Aires: Paidós; 1994.
(8). Taylor SJ, Bogdan R. La entrevista en profundidad. Introducción a los métodos cualitativos de investigación. Barcelona: Paidós; 1994.
(9). Colombia. Ministerio de Salud. Resolución Nº 008430 de Octubre 4 de 1993: por la cual se establecen las normas científicas, técnicas y administrativas para la investigación en salud. Bogotá: Ministe-rio de Salud; 1993.
(10). Lipson J. Asuntos éticos en la etnografía. En: Morse J, editor. Asuntos críticos en los métodos de la investigación cualitativa. Medellín: Universidad de Antioquia; 2003. p. 389-415.
(11). Taylor SJ, Bogdan R. La observación participante. Preparación del trabajo de campo. Introducción a los métodos cualitativos de investigación. Barcelona: Paidós; 1994. p. 31-99.
(12). Coffey A, Atkinson P. Encontrar el sentido de los datos cualitativos. 2. ed. Medellín: Universidad de Antioquia; 2002.
(13). Larrosa J, Arnaus R, Ferrer V. Déjame que te cuente. Ensayos sobre narrativa y educación. Barcelona: Laertes; 1995.
(14). Skotko B, Canal R. Apoyo posnatal para madres de niños con Síndrome de Down. Rev Syndr Down 2004; 21: 54-71.
(15). Villa López B. Recomendaciones sobre cómo comunicar malas noticias. Nure Investigación [Revista en Internet] 2007 Nov – Dic. [Acceso 18 de Agosto de 2009]; (31). Disponible en: http://www.nureinvestigacion.es/FICHEROS_ADMINISTRADOR/PROTO-COLO/pdf_protocolo_31.pdf.
(16). Payán EC, Montoya DA, Vargas JJ, Vélez MC, Cataño A, Kriko-rian A. Barriers and facilitating communication skills for breaking bad news: from the specialists’ practice perspective. Colomb Med 2009; 40 (2): 158-66. DOI: https://doi.org/10.25100/cm.v40i2.638
(17). VandeKieft GK. Breaking bad news. Am Fam Physician 2001; 64 (12): 1975-1978.
(18). Bascuñan ML, Roizblatt A, Roizblatt D. Comunicación de malas noticias en medicina: un estudio exploratorio. Rev Med Univ Na-varra 2007; 51(2): 28-31. DOI: https://doi.org/10.15581/021.9132
(19). Blummer H. Symbolic interactionism: Perspective and method. Nueva Jersey: Prentice Hall; 1969.
(20). Alves de Lima A. ¿Cómo comunicar malas noticias a nuestros pacientes y no morir en el intento? Rev Argent Cardiol 2003; 71(3).
(21). Bowlby J. Vínculos afectivos: formación, desarrollo y pérdida. 5ª ed. Madrid: Morata; 2006.
(22). Stern D, Bruschweiler-Stern N, Freeland A. El nacimiento de una madre. ¿Cómo la experiencia de la maternidad te cambia para siempre?. Barcelona: Paidós; 1998.
(23). Winnicot D. Los bebés y sus madres. Buenos Aires: Paidós; 1990.
(24). Núñez B. Familia y discapacidad de la vida cotidiana a la teoría. Buenos Aires: Lugar Editorial; 2007.
(25). Herreros B, Bandrés F, Gargantilla P. Educar en bioética al pro-fesional de ciencias de la salud. Una perspectiva internacional. Madrid: Fundación Tejerina; 2010: 36-69.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2021 Miriam Bastidas A., Gloria M. Alcaraz L.
This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.
The contents of the articles are the responsibility of the authors
The editorial committee has editorial independence from the National School of Public Health "Héctor Abad Gómez" of the University of Antioquia.
The editorial committee is not responsible for aspects related to copying, plagiarism or fraud that may appear in the articles published in it.
When you are going to reproduce and disclose photographs or personal data in printed or digital format, informed consent is required. Therefore, this requirement is required of the author at the time of receipt of the manuscript.
Authors are responsible for obtaining the necessary permissions to reproduce any material protected by reproduction rights.
The authors preserve the moral rights and assign the economic rights that will correspond to the University of Antioquia, to publish it, distribute electronic copies, include them in indexing services, directories or national and international databases in Open Access, under the Creative Commons Attribution license -Not Commercial-Share Equal 4.0 International Commercial (CC BY-NC-SA) which allows others to distribute, remix, retouch, and create from the work in a non-commercial way, as long as the respective credit and license are granted. new creations under the same conditions.
The authors will sign the declaration of transfer of economic rights to the University of Antioquia, after the acceptance of the manuscript.
The editorial committee reserves the right to reject the articles whose authors do not offer satisfactory explanations about the contribution of each author, to meet the criteria of authorship in the submission letter. All authors must meet the four criteria of authorship according to ICMJE: "a) .- That there is a substantial contribution to the conception or design of the article or to the acquisition, analysis or interpretation of the data. b) That they have participated in the design of the research work or in the critical review of its intellectual content. c) .- That has been intervened in the approval of the final version that will be published.d). That they have the capacity to respond to all aspects of the article in order to ensure that issues related to the accuracy or integrity of any part of the work are adequately investigated and resolved. "
-- 
--
