Caregiver overload and factors associated with care provided to patients under palliative care

  • Alice Regina Felipe Silva Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo
  • Jack Roberto Silva Fhon Escola de Enfermagem da Universidade de São Paulo
  • Rosalina Aparecida Partezani Rodrigues Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo
  • Mariane Thais Pecchi Leite Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo
Keywords: caregivers, palliative care, home care service

Abstract

Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care.

Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory.

Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear  regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload.

Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.

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Author Biographies

Alice Regina Felipe Silva, Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo

Nurse. Email: alice.regina.silva@usp.br

Jack Roberto Silva Fhon, Escola de Enfermagem da Universidade de São Paulo

Nurse Ph.D. Professor. Email: betofhon@usp.br. Corresponding author.

Rosalina Aparecida Partezani Rodrigues, Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo

Enfermeira Ph.D. Professora Titular. Email: rosalina@eerp.usp.br

Mariane Thais Pecchi Leite, Escola de Enfermagem de Ribeirão Preto da Universidade de São Paulo

Nurse. Email: mariane.thais.leite@usp.br

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Published
2021-03-04
How to Cite
SilvaA. R. F., FhonJ. R. S., RodriguesR. A. P., & Pecchi LeiteM. T. (2021). Caregiver overload and factors associated with care provided to patients under palliative care. Investigación Y Educación En Enfermería, 39(1). https://doi.org/10.17533/udea.iee.v39n1e10
Section
ORIGINAL ARTICLES / ARTÍCULOS ORIGINALES / ARTIGOS ORIGINAIS